Tag: Communication

Talking Parkinson’s

In the Parkinson’s community that is Parkinson’s Road; a Facebook based global support group that I write for and co-facilitate, the subject of communication between people with Parkinson’s and those close to them, arises frequently.  This is an incredibly important and complex subject and this post is just another brief aspect of a far bigger…

Naming the Writer

One of the aspects of being a writer, that I am currently contemplating, is the idea of a pseudonym.  I’m not wholly comfortable about publishing work in my own name.  I write this blog in my real name and that is okay but, at the moment, I feel uncomfortable about putting my name to anything…

Taking a Meaningful Risk

“Depart from discretion, when it interferes with duty.” – Hannah More. One of the aspects of being a person with Parkinson’s, that others may not consider, is just how difficult it is to tell others that you have Parkinson’s; particularly those closest to you.  For some, the decision to disclose the diagnosis can be an…

Keep It Real

“Life seems sometimes like nothing more than a series of losses, from beginning to end.  That’s the given.  How you respond to those losses, what you make of what’s left, that’s the part you have to make up as you go.” – Katharine Weber. One of the things that many people may not realise, is…

You Are Not Alone

“Shame derives its power from being unspeakable.” – Brene Brown. As a co-facilitator of a support group and support community for people with Parkinson’s, I see that one of the most difficult aspects for anyone participating, is to disclose personal difficulty.  Whatever we may be dealing with, there may be a significant fear of judgement…

Parkinson’s Meds Side Effects

One of the subjects that people with Parkinson’s have both experience of and opinion about is that of side effects caused by medication.  The possible side effects of short and long-term medication use are well listed within the information leaflets found within medication packs.  Side effects are also well listed and, more importantly,  described on…

I Virtually Did

At the end of each day, before I eventually sleep, I like to reflect over what I achieved that day.  Today, while doing some reflective thinking, I realised something about what I achieved yesterday.  I wonder if you will identify with this? I went to work to meet with my clients.  I didn’t actually leave…

How to Slow Time Down

One afternoon over this last weekend, I sat outside The Flying Goose Café in the wonderful antiques centre in my village, with Aunty Ann; my other-half’s lovely Aunt.  The café offered me welcome respite from trying to walk with the pain and difficulty caused by Parkinson’s.  We sat outside, in the rear garden area of the antiques centre and enjoyed a…

You Are Not to Blame

Surviving the loss of a loved one, who took their own life through suicide, has a number of complexities that the natural death of a loved one, may not necessarily have.  Some, or all, of the following responses are common: Shock Frustration Anger Disbelief Denial Helplessness Fixating on the imagined, or known, image of the…

Down Time

I made a rather rough sketch of myself on a day when I needed to find comfort and rest from the chronic pain and other symptoms that I suffer.  Sketching, and other forms of art, can be a therapeutic way to express oneself and to process how it feels to experience difficulties that are caused by illness. …