Tag: Expectations

Talking Parkinson’s

In the Parkinson’s community that is Parkinson’s Road; a Facebook based global support group that I write for and co-facilitate, the subject of communication between people with Parkinson’s and those close to them, arises frequently.  This is an incredibly important and complex subject and this post is just another brief aspect of a far bigger…

Naming the Writer

One of the aspects of being a writer, that I am currently contemplating, is the idea of a pseudonym.  I’m not wholly comfortable about publishing work in my own name.  I write this blog in my real name and that is okay but, at the moment, I feel uncomfortable about putting my name to anything…

Taking a Meaningful Risk

“Depart from discretion, when it interferes with duty.” – Hannah More. One of the aspects of being a person with Parkinson’s, that others may not consider, is just how difficult it is to tell others that you have Parkinson’s; particularly those closest to you.  For some, the decision to disclose the diagnosis can be an…

We Stepped Through the Screen

Meeting people that you know online, in-person for the first time, can be quite daunting. Many people will be used to this scenario either through work or through online dating.   Last weekend, I was excited to be going out to a special event.  As my regular readers will know, I am one of a…

Keep It Real

“Life seems sometimes like nothing more than a series of losses, from beginning to end.  That’s the given.  How you respond to those losses, what you make of what’s left, that’s the part you have to make up as you go.” – Katharine Weber. One of the things that many people may not realise, is…

You Are Not Alone

“Shame derives its power from being unspeakable.” – Brene Brown. As a co-facilitator of a support group and support community for people with Parkinson’s, I see that one of the most difficult aspects for anyone participating, is to disclose personal difficulty.  Whatever we may be dealing with, there may be a significant fear of judgement…

Parkinson’s Meds Side Effects

One of the subjects that people with Parkinson’s have both experience of and opinion about is that of side effects caused by medication.  The possible side effects of short and long-term medication use are well listed within the information leaflets found within medication packs.  Side effects are also well listed and, more importantly,  described on…

You Can Do Parkinson’s

One of the difficulties that people with Parkinson’s tell me about is their sense of frustration at the realisation their diagnosis has changed them forever.  I know this feeling, myself.  I too am well aware of the limitations this disease has upon my life and of how I will never regain my former good health…

My Parkinson’s Review Consultation

As many of my readers who are, themselves, living with Parkinson’s will know, we patients have to attend a regular consultation with our Neurologists to discuss how we have been doing and to monitor for disease progression.  Today, I attended my second review appointment.  This time, to help save me a longer journey to Ipswich…

Deciding to Accept Parkinson’s

“The more I expect, the more unhappy I am going to be.  The more I accept, the more serene I am.” – Michael J. Fox. One of the most common difficulties that I see, in other people with Parkinson’s, is frustration.  Indeed, I see this in myself at times, too.  Frustration that comes from having…